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Authors: Diving Bell,the Butterfly

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Season of Renewal

Summer is nearly over. The nights grow chilly, and once again I am snuggled beneath thick blue blankets stamped “Paris Hospitals.” Each day brings its assortment of familiar faces: linen maid, dentist, mailman, a nurse who has just had a grandson, and the man who last June broke his finger on a bed rail. I rediscover old landmarks, old habits; and this, the start of my first autumn season at the hospital, has made one thing very plain—I have indeed begun a new life, and that life is here, in this bed, that wheelchair, and those corridors. Nowhere else.

September means the end of vacations, it means back to school and to work, and here at the hospital it’s time to start a new season. I’ve made some progress. I can now grunt the little song about the kangaroo, musical testimony to my progress in speech therapy:

The Kangaroo escaped the zoo.

“Goodbye zoo!” cried Kangaroo…

Cleared the wall with one clean jump,

Leaped across with a great big thump…

But here at Berck I hear only the faintest echoes of the outside world’s collective return to work and responsibility…its return to the world of literature and journalism and school, to the workaday world of Paris. I shall hear more about it soon, when my friends start journeying back to Berck with their summer’s worth of news. It seems that Théophile now goes around in sneakers whose heels light up every time he takes a step. You can follow him in the dark. Meanwhile, I am savoring this last week of August with a heart that is almost light, because for the first time in a long while I don’t have that awful sense of a countdown—the feeling triggered at the beginning of a vacation that inevitably spoils a good part of it.

Her elbows on the small mobile Formica table that serves as her desk, Claude is reading out these pages we have patiently extracted from the void every afternoon for the last two months. Some pages I am pleased to see again. Others are disappointing. Do they add up to a book? As I listen to Claude, I study her dark hair, her very pale cheeks, which sun and wind have scarcely touched with pink, the long bluish veins on her hands, and the articles scattered about the room. I will put them in my mind’s scrapbook as reminders of a summer of hard work. The big blue notebook whose pages she fills with her neat, formal handwriting; the pencil case like the ones schoolchildren use, full of spare ballpoints; the heap of paper napkins ready for my worst coughing-and-spitting fits; and the red raffia purse in which she periodically rummages for coins for the coffee machine. Her purse is half open, and I see a hotel room key, a metro ticket, and a hundred-franc note folded in four, like objects brought back by a space probe sent to earth to study how earthlings live, travel, and trade with one another. The sight leaves me pensive and confused. Does the cosmos contain keys for opening up my diving bell? A subway line with no terminus? A currency strong enough to buy my freedom back? We must keep looking. I’ll be off now.

         

Berck-Plage, July—August 1996

Acclaim for
Jean-Dominique Bauby’s

The Diving Bell and the Butterfly

“The sentences soar, unburdened by self-pity or despair, and the progression of short, lyrical chapters begin to resemble the beating of wings.”


The New Yorker

“An admirable testament to the unkillable self, to the spirit that insists on itself so vehemently that it ultimately transcends and escapes the prison of the body.”

—Francine Prose,
Newsday

“The most remarkable memoir of our time—perhaps of any time.”

—Cynthia Ozick

“Shattering eloquence…. The real glory here is Bauby himself, whose spirit asserts itself again and again in the words that survive him.”


Miami Herald

“To read this most extraordinary of narratives is to discover the luminosity within a courageous man’s mind…. Incomparable.”

—Sherwin B. Nuland, M.D.

“Mesmerizing.”


Newsweek

“Read this book and fall back in love with life…. The prose…is as light as the sprightliest humor, as pungent as the scent of cooking apricots, as vigorous as the step of a young man setting out on a first date.”

—Edmund White

FIRST VINTAGE INTERNATIONAL EDITION, JULY
1998

Copyright
©
1997 by Éditions Robert Laffont, S.A., Paris

All rights reserved under International and Pan-American Copyright Conventions. Published in the United States by Vintage Books, a division of Random House, Inc., New York. Originally published in France as
Le Scaphandre et le Papillon
by Éditions Robert Laffont, S.A., Paris, in 1997.
This translation first published in hardcover in the United States by Alfred A. Knopf, Inc., New York, in 1997.

Grateful acknowledgment is made to EMI Music Publishing for permission to reprint excerpts from “A Day in the Life” by John Lennon and Paul McCartney, copyright © 1967, copyright renewed 1995 by Sony/ATV Songs LLC. Administered by EMI Blackwood Music Inc. (BMI). All rights reserved. International copyright secured. Used by permission.

LC 97–71922

Author photograph © Jean-Loup Sieff

Random House Web address:
www.randomhouse.com

For more information on locked-in-syndrome:
A.L.I.S. (Association of the locked-in-syndrome)
http://www.club-internet.fr/alis
e-mail:
[email protected]
38 Boulevard Jean Jaures
92100 Boulogne
France

www.vintagebooks.com

eISBN: 978-0-307-45483-6

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