Love Anthony (38 page)

First, I need to thank all the amazing parents who so generously shared their experiences with me. I can’t thank you enough for opening your personal lives to me, for teaching me what you know about autism, and for trusting me with this knowledge. I know that what you gave to me is extraordinary. Thank you Tracey Green, Kelly Gryglewicz, Kate Jacobson, Jackie Maust, Susanna O’Brien, Holly Shapiro, Ginger Shephard, and Jim Smith.

Thank you Dr. Barry Kosofsky, one of my first teachers, for your insights as a pediatric neurologist and for describing the current scientific and medical understanding of autism. It was great to learn from you again.

Thank you Corinne Murphy Genova, MEd, BCBA, for your insights as an applied behavioral analysis specialist.

Thank you Jennifer Buckley and Reine Sloan for your generosity, for helping me better understand what happens before, during, and after seizures. Thank you Dr. Jessica Wieselquist for explaining the clinical perspective.

Thank you to Jessica Lucas for sharing her expertise as an emergency medical technician.

Thank you to everyone who helped me come to know and love the quirky and beautiful island of Nantucket: John Burdock, Sarah Crawford, Michael Galvin, Dr. John Genova, Wendy Hudson, Tina and Richard Loftin, Jacqueline and Vincent Pizzi, Nancy and Peter Rodts, Susan Scheide, Dr. Louise Schneider.

Thanks also to Anne Carey, Sue Linnell, and Christopher Seufert for accompanying me on various trips to the island.

Thank you to Father Jim Hawker for providing information about the Catholic Church.

Thank you Mary Ann Robbat for sharing your insights about channeling.

Thank you Addie Morfoot Kauffman for helping me to imagine the details of Beth’s professional life in New York City prior to moving to Nantucket.

Thank you Jill Abraham for role-playing a pivotal scene with me at Starbucks (Jill was Petra, I was Beth).

Thanks to my baristas and good friends at Starbucks for guarding “my seat” and for providing me with all the chai tea lattes I could drink: Lauren Fowler, Desiree Gour, Brandon Lopes, Erin McKenna, and Mary Trainor.

Thanks to Ann Hood for the glorious writing retreat at Spannocchia.

Thanks to the Peaked Hill Trust for the truly amazing artist residency in the Margo-Gelb dune shack in Provincetown.

Thanks to Danyel Matteson for providing me with the opportunity to spend some uninterrupted time writing in a stunning room at the Chatham Bars Inn.

For the time and space to write this book, I thank my parents, Mary and Tom Genova; my in-laws, Marilyn and Gary Seufert; Sue Linnell; and especially my husband, Christopher Seufert.

For reading each chapter, for sharing this journey with me, and for the many needed pep talks along the way, I thank
Vicky Bijur, Anne Carey, Laurel Daly, Kim Howland, Mary MacGregor, and Christopher Seufert.

Thank you to my incredible team at Simon & Schuster for believing in this story—Kathy Sagan, Jean Anne Rose, Ayelet Gruenspecht, Anthony Ziccardi, Jennifer Bergstrom, and Louise Burke.

Thank you to Vicky Bijur and Kathy Sagan for reading and rereading, for your invaluable insights. This book is infinitely better because of your input.

Thank you to Chris, Alena, Ethan, and Stella for your love and patience.

Finally, I thank Tracey Green. Thank you, Trace, for trusting me to write this story. I wrote this book for you, with all my love.

READERS GROUP GUIDE

LOVE ANTHONY
by Lisa Genova

Book Summary

Love Anthony
is the latest novel from the award-winning,
New York Times
bestselling author of
Still Alice
and
Left Neglected
, about an accidental friendship forged between two women on a Nantucket beach; a friendship that provides peace to one, validation to the other. Olivia is a thirty-something mother whose eight-year-old, nonverbal autistic son has recently died. With her marriage badly strained by years of stress, she has come to the island recently separated, trying to understand the purpose of her son’s short life. Beth, a stay-at-home mother of three already living on Nantucket, is also recently separated, after discovering her husband’s infidelity. In an attempt to recapture a sense of her long-lost independence, Beth rekindles her passion for writing, determined to discover her identity again. But surprisingly, as she uncovers her own voice, Beth also finds herself channeling the voice of an unknown boy, a voice that will give both women the comfort and answers they need.

Questions for Discussion

1. How much did you know about autism before starting
Love Anthony
? Do you know anyone who has autism or an autistic person in their family?

2. What significance does the setting of Nantucket play in this story? Would the story have been different if it had taken place in New York City or Chicago?

3. Beth pulls a box out of her attic, filled with remnants from her old life, and is reminded of the woman she once was. If you were to go through a box from your attic, what items might you find?

4. On the subject of marriage and fidelity, Beth’s friend Courtney muses: “You’re always at the mercy of the people you’re in a relationship with, right?” you agree? What do you think of the advice she offers Beth?

5. Do you think the author accurately captures the voice of a young autistic boy in the
Anthony
chapters? Did these sections enhance Beth’s story for you? What about Olivia’s journal entries?

6. After receiving David’s letter about his impending engagement, Olivia ponders the concept of happiness: “He’s right. She forgot about happiness. At first, it wasn’t a priority. Anthony had autism, and every ounce of energy went into saving him. Her happiness was irrelevant.... And then, just when she was starting to realize that happiness and autism could coexist in the same room, in the same sentence, in her heart, Anthony died, and happiness was no longer a concept she could fathom.” Do you think happiness is a conscious choice? Do you find it telling that Olivia uses the phrase “saving him” in reference to Anthony and his autism?

7. Toward the end of the story, Olivia has an epiphany when she realizes: “There was more to Anthony’s life than his death. And there was more to Anthony than his autism.” What do you think finally enables Olivia to have this realization? Was it a singular event or a process?

8. When Jimmy and Beth share their homework assignments given to them by Dr. Campbell, were you surprised by Beth’s initial reaction? Why is forgiving Jimmy the one thing Beth can’t do?

9. After reading Beth’s novel, Olivia is convinced Anthony is speaking to her through Beth. Skeptical, Beth discusses the idea with the more spiritual Petra, who feels “we’re all connected, even if we don’t know how. Maybe communicating through you gives you the something you need in this lifetime.” Do you agree or disagree with Petra?

10.  Through writing her book, Beth realizes: “This story was more about Anthony the boy than Anthony the boy with autism.... She was simply writing about Anthony, a boy worthy of happiness and safety, of feeling wanted and loved. Just like her. The more she wrote about Anthony, the more she realized that she was actually writing about herself.” How so?

11. Beth ultimately decides the lesson of her book is “Find someone to love and love without condition.” Do you think this could also apply as an overall theme for
Love Anthony
? What about other themes?

12. Which character did you relate to the most, and why? Where do you see these characters in five years?

13. What do you think of Beth’s epilogue? Do you think it provides a satisfying ending to her story? To the novel as a whole?

14. Another recurring theme of
Love Anthony
is faith—having faith, losing faith, and taking a leap of faith. Can you remember a time in your own life when you took a leap of faith?

Enhance Your Book Club

1. Visit the website
http://www.autismspeaks.org
to learn more about autism and different fundraising or awareness-raising events your book club can participate in.

2. The author is a keen public speaker and tours often with her books. Check out the author’s website to see if she’s speaking near you:
http://lisagenova.com/
.

3. When out at Salt with her friends, Jimmy makes Beth a special drink—a Hot Passion Martini. Why not concoct a signature drink (with or without alcohol) for your book club gathering? Invent another Nantucket Knockout.

A Conversation with Lisa Genova

You have said that Oliver Sacks, along with your grandmother’s struggle with Alzheimer’s inspired you to pen
Still Alice
. Was there a particular person in mind when you started
Love Anthony
?

This book began with Anthony, a boy with autism who doesn’t speak, inspired by my cousin’s beautiful autistic son, Anthony. My cousin and I are close, and my oldest daughter and Anthony are the same age. We spent much of their baby and early childhood years together. So, as with
Still Alice
, this story sprang from a deeply personal place.

What kind of research did you undertake for this novel?

I did a lot of research on autism for this novel. I read as many books, blogs, and research articles as I could both before and while writing
Love Anthony
—from fiction to memoir to clinical texts. A list of the books I read can be found at my website. I interviewed physicians, behavioral therapists, an EMT, and people who’ve experienced seizures. The most important research involved talking with parents of children (age 3–17) with autism. These conversations were intensely personal, raw, honest, and generous. I can’t thank these parents enough for what they shared with me.

I also spent a lot of time researching the island of Nantucket. This involved reading many books about the island, interviewing people who live there (natives, summer people, and wash-ashores), and hopping the high speed ferry from Cape Cod to Nantucket as many times as I could throughout the year.

Did you intend to make it a two-fold story (two characters whose lives intersect), or did that come organically?

This was the intention from the beginning. I did this for two reasons. First: Both for the child who has it and for the families who love and advocate for them, autism can be incredibly isolating. When I talked with parents and professionals who know autism, I repeatedly heard the same words:
isolated
,
disconnected
,
solitary
,
alone
. While isolation is a very real aspect of living with autism—and I certainly needed to portray this in the book—I wanted to show people connecting (lives intersecting) through autism.

Second: Much of the focus on autism, especially among people who aren’t all that familiar with it (like Beth at first), is on all the ways that autistic children are different from typical children. The focus is on what is strange or abnormal or even tragic. Again, that is there, but I also wanted to shed light on what is the same among all of us, whether you have autism or not. How do we connect as human beings with each other? Are we all capable of this? What happens when we can’t or won’t or give up on connecting? What happens when we find a way to truly understand and accept each other?

You have your degree in biopsychology and a PhD. in neuroscience. How has your education influenced your writing?

Neuroscience continues to be the first and foremost influence on what I’m interested in writing about. I’m definitely still a nerdy girl who loves learning about how the brain works. I love that I get to weave this passion for neuroscience into the stories I tell as a novelist. I get to ask the questions I care about most, questions about the brain and the bigger questions about life, and then try to answer them as best I can through stories. I’m a lucky, nerdy girl!

What part of the writing/publishing process do you find the most challenging—the researching, actual writing, editing, or public speaking at conferences and on book tours?

I honestly love all of those aspects of being a writer, even (and especially) the challenges. I think the most challenging part is when I have to do all of these at once! For example, many times in the past year while traveling on book tour for
Left Neglected
or on a speaking tour for
Still Alice
, I would read a book about autism on the plane and then write some of
Love Anthony
in a Starbucks (Sydney, London, Montreal) before having to give a talk about Alzheimer’s or a book event about
Left Neglected
. So on any given day, I might be writing about Olivia and Anthony and autism but also talking about Alice and Alzheimer’s or Sarah and Left Neglect.