Inside the Dementia Epidemic: A Daughter's Memoir (43 page)

     statistics,
1-2

     
see also
dementia
;
research
;
risk factors

Alzheimer’s Disease and Other Dementias: The Caregiver’s Complete Survival Guide
,
283

Alzheimer’s Disease Facts and Figures
,
312

Alzheimer’s Foundation of America,
320
,
324

Alzheimer Society of Canada,
291

amae,
271

American Sleep Apnea Association,
300

Americans with Disabilities Act,
267

amyloid,
see
beta-amyloid

amyloid beta-derived diffusible ligand,
306

anger,
30-31
,
43-44
,
47
,
50
,
55
,
59
,
65-69
,
72
,
75
,
114
,
134

     
see also
violence
;
agitation

antibiotics,
231
,
253-254

antisocial behavior,
274-276

anxiety,
10
,
44
,
204

apathy,
274

APOE ε4 allele,
301

appetite, loss of,
see
diet and food

area agencies for aging,
39
,
60
,
211
,
260
,
322

Aricept,
293

aspiration of food,
19

assets,
see
Medicaid

assisted living,
40-41
,
46
,
60
,
74
,
76
,
84-85
,
95
,
171
,
284

     costs of,
78
,
211

     description of,
77-78

     enriched license,
174

     Green House Project and,
248

     limits of services provided by,
86
,
99
,
106
,
121
,
131
,
166-167

     Medicaid and,
211

Australia,
320
,
325

autopsy,
276

Axona,
307

bacteria,
302

“bad neighborhood” hypothesis,
302

Basting, Anne Davis,
238

bathing,
see
showering

bed rails,
see
safety and a safe environment

behavioral changes,
19
,
276

beta amyloid,
276
,
289
,
291
,
306-307

biomarkers,
290-292

bipolar II disorder,
268-276

birthday celebrations,
149
,
262
,
278
,
281

biting,
204

blood pressure,
106
,
295
,
300

blood sugar,
see
insulin resistance

blood test, for Alzheimer’s disease,
303

body work for elders,
255
,
265
,
267

boredom,
245

bowel incontinence,
see
incontinence

bowel obstruction,
116-117
,
120-121
,
123

brain:

     importance of stimulation of,
10
,
296

     scans,
289-291

     shrinkage,
296

Breakthrough Act,
324

Bright-Sided: How the Relentless Promotion of Positive Thinking Has Undermined America
,
256

Britain,
317

car,
see
driving

carbohydrates,
see
diet

cardiovascular disease,
105
,
321

caregivers:

     asking for help,
3
,
11
,
37

     caring for self,
2-3
,
36
,
41
,
57
,
61
,
165
,
177
,
186
,
257
,
266

     counseling for,
41
,
57
,
284
,
322

     organizations,
see
support

     resources,
see
support

     respite,
57
,
76
,
318
,
322

     surrogate decision-making by caregiver,
116
,
119
,
216-217
,
257

caregiving:

     and depression,
2

     and fatigue, stress,
2-3
,
41
,
60
,
124
,
147
,
165
,
178
,
186
,
194
,
223

     and job demands,
39
,
57
,
61-62
,
133
,
137
,
165

     long-distance,
151
,
193

     monetary value of,
2

     statistics,
1-2

care partners,
151
,
246

care plan meetings,
157-159
,
196-201
,
222
,
228
,
278-279

     
see also
personal care plan

Caring for Our Parents
,
316

case management,
85
,
103
,
121
,
123

Castronovo, Vincenza,
299

CAT scan,
see
CT scan

cataracts,
111

Centers for Medicare & Medicaid Services,
311
,
322

Changing Aging blogstream,
247

checkbook management,
see
cognitive function

children:

     and grandparent with dementia,
61
,
74
,
225

     visiting in nursing homes,
245

cholesterol,
106
,
295
,
297
,
308

CLASS Act,
see
Community Living Assistance

Services and Supports Act

clinical trials,
289-291
,
301-302
,
312

     
see also
research

cognitive function,
12
,
53-54
,
105
,
294
,
298
,
306-307
,
310

     checkbook management,
12
,
20
,
37-38
,
40
,
53
, 6,
107

     mild cognitive impairment,
17
,
20
,
52
,
54

     planning and organizing,
24
,
47
,
54
,
299

     reading,
35
,
89
,
93
,
112

     
see also
brain, importance of stimulation of

cohousing, elder,
318

cold sores,
304

Columbia University,
301

combativeness,
see
agitation

     
see also
violence

communication:

     between caregiver and facility staff,
101
,
114
,
122-123
,
140
,
173
,
181

     between caregiver and person with dementia,
60
,
151-153
,
155
,
163-164
,
238-243
,
253-254
,
265
,
273
,
280-281

     by person with dementia,
see
cognitive function

     non-verbal,
152
,
237-240
,
263
,
270
,
276
,
280-282

Community Living Assistance Services and Supports Act,
313-317

comprehension,
see
cognitive function

compulsive behavior,
19
,
220

constipation,
115

contact lenses,
see
eye care

continuing care,
250

Continuous Positive Airway Pressure,
see
CPAP

cooperation,
158
,
163

correcting,
89
,
152-153

Coste, Joanne Koenig,
239

counseling,
see
caregivers, counseling for

CPAP,
298-299

craving sweet food,
275

CT scan,
45
,
53

cueing,
234

culture change, in elder care,
244-249

cure,
2
,
292
,
320
,
325

     
see also
research, and dementia

Cures Accelerations Network,
325

dancing,
202

Dancing with Rose: Finding Life in the Land of Alzheimer’s
,
186
,
221

day care,
see
adult day care

Deans, Emily,
309

death,
see
end-of-life concerns

decision-making,
see
caregivers: surrogate decision-making by

dehydration,
278

dementia:

     care, cost of,
2-3

     diagnosing,
17
,
43
,
275
,
283
,
289-291

     progression, slowing of,
2
,
293

     statistics,
1-2

     symptoms of,
17-20
,
51
,
54
,
144

     types of,
2

     ward,
see
nursing homes
,
dementia care units

     
see also
Alzheimer’s disease
;
Frontotemporal dementia
;
multi-infarct dementia
;
research
;
risk factors

Dementia Beyond Drugs: Changing the Culture of Care
,
264

dementia care units,
see
nursing homes
,
dementia care units

denial,
10
,
15-16
,
26
,
36
,
119
,
222
,
235-236

dental visits,
88
,
242

Depakote,
52

Depends,
see
diapers, adult

depression,
10
,
28
,
33
,
51
,
60
,
279
,
283
,
289
,
300
,
310
,
312

     and bipolar II disorder,
269

     
see also
caregiving, and depression

despair,
279

diabetes,
280
,
295
,
297
,
305-306
,
309-310

diagnosis,
see
dementia

Diamond, Jack,
291-292
,
301

diapers, adult,
121
,
135
,
155
,
166-167
,
182
,
214-215
,
219
,
266

diet: food, and eating,
84
,
159
,
161-162
,
197
,
278

     appetite loss and,
15
,
33
,
38
,
144
,
147
,
180
,
192
,
235

     assistance with cooking,
13
,
18
,
58
,
75-76
,
283

     carbohydrates,
106
,
307-309

     difficulties with,
19
,
38
,
43
,
57
,
106
,
159
,
234-235
,
271
,
285

     finger food,
260

     in the Green House Project,
247

     in restaurants,
191-192

     ketonic,
307
,
309

     refusing,
31
,
33
,
38
,
115
,
144
,
147
,
180
,
235
,
259-260
,
285

     sugar,
21
,
43
,
51
,
106-108
,
130
,
132
,
144
,
147
,
192
,
235
,
243
,
275
,
280-281
,
297
,
305-309

     supplements,
235

     trans fat,
21
,
295

     weight loss and,
14-15
,
199
,
234
,
259-260
,
278
,
280

     
see also
feeding tubes

dieticians,
see
nutritionists

dignity,
155
,
247

discharge planning,
see
nurses, discharge

divorces,
233-234

doctors:

     adult children’s relationship with,
113-114

     driving issue and,
15