Inside the Dementia Epidemic: A Daughter's Memoir (44 page)

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Authors: Martha Stettinius

Tags: #Alzheimers, #Biography & Autobiography, #Medical, #Nonfiction, #Personal Memoir, #Retail

BOOK: Inside the Dementia Epidemic: A Daughter's Memoir
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     in the Green House Project model,
249

     primary care,
88
,
119
,
229
,
262
,
269
,
279
,
283
,
289
,
310-312
,
322

dogs,
see
pets

dolls,
155
,
222

Donepezil HCl,
293

“do not resuscitate” order (DNR),
116
,
228

Down’s Syndrome,
322

dressing,
18-19
,
43
,
57
,
107
,
121
,
131
,
181-182
,
220
,
284

drinking,
see
dehydration

driving,
8
,
15
,
31-32
,
40
,
53
,
75
,
283

drug research,
see
medication

drugs,
see
medication

Duntley, Stephen,
299

durable power of attorney,
76
,
109
,
261
,
285

Durrett, Charles,
318-319

dysphagia,
see
swallowing difficulties

E

early-onset Alzheimer’s,
see
familial Alzheimer’s

eating,
see
diet and food

     
see also
hydration
;
swallowing difficulties

Eden Alternative, The,
244-245
,
249-250

Eden at Home,
245-246

Effexor,
52

Ehrenreich, Barbara,
256

elder care attorneys,
see
legal issues

elder cohousing,
see
cohousing

Elm Haven,
171-175
,
178-180
,
190-206
,
208-223
,
225
,
227-228
,
234-237
,
241-244
,
253
,
255-258
,
263
,
265
,
278
,
285

emergency rooms,
45
,
115-119
,
128-129
,
213-216
,
253
,
278
,
280

end-of-life concerns,
24
,
137
,
228-229
,
260-261
,
279
,
285-286

entitlement programs,
see
Medicaid
;
Medicare

epidemic,
1
,
3
,
10

evolutionary medicine,
309

exercise,
2
,
87
,
106
,
172
,
295-296

expenses,
see
financial matters

eye care,
2
,
111

     contact lenses,
42
,
87
,
108-109

     glasses,
109
,
111-112
,
237

F

falls,
12
,
14
,
21
,
91
,
105
,
112
,
128
,
159
,
174
,
185
,
212
,
253
,
258

familial Alzheimer’s,
2
,
214
,
320

Family and Children’s Services,
41
,
57
,
284

family caregivers,
see
caregivers

family histories,
see
genetics and dementia

family medicine,
see
doctors, primary care

fat, trans,
see
diet

fear,
20
,
97
,
156
,
184
,
239

fecal incontinence,
see
incontinence

feces, smearing of,
222

feeding tubes,
229
,
260

financial matters,
78
,
83
,
100
,
109
,
122
,
175
,
210
,
213
,
224-225
,
231
,
254
,
262
,
266-267
,
284
,
312

     
See also
cognitive function
;
long-term care, planning for
;
Medicaid
;
Medicare
;
Medigap

florbetapir,
289

food,
see
diet and food

Food and Drug Administration,
289
,
325

Forbes,
83

Forget Memory: Creating Better Lives for People with Dementia
,
238

frailty,
23
,
48
,
105-106
,
235

France, dementia screening,
298

free radicals,
304

friends,
29
,
36
,
38-39
,
76
,
79
,
88-89
,
99
,
150
,
160
,
177
,
255
,
263
,
266
,
275
,
296-297

frontotemporal dementia,
274-276

funding for care,
see
financial matters

funeral arrangements,
24

G

Gandy, Sam,
320

genetics, and dementia,
295
,
303

geriatric care managers,
60
,
116
,
283-285

geriatricians:
310

     shortage of,
88

Germany,
311
,
316

gerontology,
264

glasses,
see
eye care

Gleckman, Howard,
316-317

glucocorticoids,
304

Good Calories, Bad Calories: Challenging the Conventional Wisdom on Diet, Weight Control, and Disease
,
308

grape pie,
222-223

Green House Project, The,
246-249

Greenway,
77-79
,
83-86
,
88-91
,
93-95
,
97-105
,
111-115
,
117-128
,
164-166
,
172
,
175
,
210
,
249
,
263

grief,
188-189

     
See also
end-of-life concerns
;
living grief

grooming,
143
,
191

Grossman, Murray,
275

growth factors,
304

guardianship,
75-76

guilt,
11
,
60-61
,
79
,
95-97
,
131
,
145
,
157
,
187
,
297

Gut and Psychology Syndrome (GAPS) diets,
308

H

Hadas, Rachel,
276

hair brushing,
see
grooming

Harvard School of Public Health,
311

Harvard University,
244
,
301
,
311

head trauma,
295

Health and Human Services, Dept. of,
321-323

health care proxy,
40
,
213
,
261
,
279
,
285

Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act,
323

heart disease,
see
cardiovascular disease

helplessness,
245

heredity and dementia,
see
genetics and dementia

herpes virus HSVI,
304

Hipsaver
®
,
159
,
163
,
181
,
216
,
219

hitting,
see
agitation
;
violence

hoarding,
21
,
54
,
283

holidays,
206
,
221
,
224

home care,
see
home care aides
;
Eden at Home
;
nurses, visiting

home care aides,
13
,
36
,
46
,
74
,
103-105
,
113-117
,
119
,
121-123
,
129
,
131
,
166
,
176
,
181
,
212
,
231
,
284
,
322

honesty,
22
,
152
,
239

HOPE Act,
see
Health Outcomes, Planning, and Education for Alzheimer’s Act

hospice,
261
,
280
,
322

hospitalization,
130-138
,
245

     and heroic measures,
280

     
see also
emergency room

housework: difficulties with,
21
,
58
,
269
,
283

humor,
100
,
137
,
141
,
243
,
255
,
278
,
281

hydration,
see
dehydration

hyperoral behavior,
260
,
271-272
,
275-276

hypersensitivity,
186

hypomania,
53
,
268
,
275

I

I’m Still Here: A Breakthrough Approach to Understanding Someone Living with Alzheimer’s
,
239-255

incontinence,
19
,
43
,
57
,
115
,
120-122
,
130-131
,
136
,
144
,
166
,
175
,
181-182
,
194
,
214
,
220
,
239
,
266
,
284

     medication for,
188
,
199-200

infection:

     as possible cause of dementia,
254
,
302

     urinary tract,
158
,
166
,
194

inflammation,
301
,
304-305

injuries,
44-45

     
see also
falls

instrumental activities of daily living (IADLs),
58

insulin resistance,
106
,
108
,
280
,
297
,
305-309

intentional communities,
14
,
28-29
,
151
,
232
,
318-319

     and long-term care,
231
,
318-319

intubation,
229

irritability,
55
,
142
,
158
,
269

     
see also
anger

invisibility, of caregiving,
146
,
148

isolation, as risk factor for dementia,
9-10

     
see also
withdrawing

Italy,
299

J

Johns, Harry,
323

judgment, poor,
53-54
,
57
,
274-275

K

Kessler, Lauren,
186
,
221

ketogenic diet,
see
diet
,
ketonic

ketonic diet,
see
diet
,
ketonic

kicking,
204

King and I, The
,
132

Kyushu University,
306

L

LaBastille, Anne,
9

La Leche League,
63

language function,
19
,
53
,
89
,
128
,
134
,
149-150
,
152-153
,
231-232
,
235
,
238-240
,
253-254
,
274-276

laughter,
see
humor

lawyers,
see
legal issues

Learning to Speak Alzheimer’s
,
239

legal issues,
40
,
254
,
285

     
See also
end-of-life concerns

Life Worth Living: How Someone You Love Can Still Enjoy Life in a Nursing Home
,
244

lithium,
269

living grief,
188-189

living wills,
40
,
116
,
285

loneliness,
35
,
84
,
94
,
105
,
120
,
164
,
239
,
245

longevity,
16

Longo, Frank,
289-291

long-term care: planning for, and insurance,
58
,
313-320

     
See also
cohousing
;
Medicare
,
Medicaid

Long-term care service agencies,
122
,
212

Long-term Living
,
248

look-back period,
see
Medicaid

lying, therapeutic,
22
,
152
,
186

M

Mace, Nancy,
40

mammograms,
90

Maple Grove,
77-78
,
131
,
167
,
171

massage,
see
body work for elders

mastectomy,
65
,
90
,
181

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