Inside the Dementia Epidemic: A Daughter's Memoir (45 page)

meals,
see
diet and food

Meals on Wheels,
34
,
57

Medicaid,
244
,
257
,
266-267
,
279
,
285

     application for,
225
,
244
,
254
,
261
,
285

     assets and,
210
,
225
,
254
,
267
,
285

     “gifting” and,
254
,
262
,
264
,
285

     government expenditure compared to unpaid caregiving,
1-2

     Green House Project and,
248

     look-back period and,
211
,
254

     Medicare compared with,
58

     nursing homes and,
211
,
250
,
256

     penalty period and,
262

     spend-down and,
58
,
254

Medical Orders for Life-Sustaining Treatment form,
229

Medicare,
84
,
210
,
266
, 288

     custodial care not covered by,
58

     discharge process defined by,
164

     end-of-life discussions and,
229

     government expenditure compared to unpaid caregiving,
1-2

     Green House Project and,
248

     Medicaid compared with,
58

     Medigap and,
36
,
266-267

     payroll taxes and,
316

     vision screenings covered by,
298

medication:

     anti-anxiety,
52

     anti-depressant,
52
,
104

     for agitation,
172
,
248

     for Alzheimer’s,
16
,
40
,
120
,
283
,
293-294

     help taking,
27
,
47
,
77
,
85-86
,
106
,
141
,
174

     paying for,
84
,
266

Medigap policies,
36
,
84
,
210
,
267

meditation,
272

melatonin,
212

memory:

     boxes,
173

     care,
78
,
124
,
131
,
167
,
186
,
221
,
231
,
256
,
258
,
285

     concealing loss of,
44

     consultations,
310

     costs,
175
,
200
,
244

     description,
171-173

     loss

          short-term memory loss,
42-43
,
58
,
60

          long-term memory loss,
42
,
58
,
90
,
137
,
183
,
195
,
266

mild cognitive impairment,
17
,
20
,
52
,
289-290
,
296

“mixed” dementia,
2
,
10
,
312

money,
see
financial matters

mood swings,
18
,
33
,
44
,
47

Mount Sinai Alzheimer’s Disease Research Center,
320

multi-infarct dementia,
2
,
10
,
15
,
42
,
53
,
105
,
120-121
,
128
,
162
,
233

music,
78
,
99
,
132
,
172
,
202
,
207-209
,
225
,
232
,
255
,
258
,
263-264
,
266
,
270
,
296

Namenda,
293-294

Nardil,
52

nasal spray of insulin,
306

National Alzheimer’s Project Act,
324

National Council of Certified Dementia Practitioners,
322

National Institute on Aging (NIA),
53
,
290
,
303
,
320

National Institutes of Health,
290
,
321

National Plan to Address Alzheimer’s Disease,
285
,
321

National Sleep Foundation,
300

NCB Capital Impact,
248

nerve cells,
see
neurons

neurologists,
283-284
,
296
,
299
,
310
,
320

Neurology
,
295

neurons,
280
,
291
,
295-297
,
299-301
,
304
,
307

neuropsychological testing,
43
,
53-54
,
268
,
283
,
289

New York Times
,
105
,
229

non-hospital order not to resuscitate,
228

Northwestern University,
306

nurses:

     discharge,
133
,
137

     in assisted living facilities,
117-118
,
120-123

     in elder cohousing,
319

     in the Green House Project,
249

     in the hospital,
134-137
,
215-216

     in “memory care,” 172,
178
,
196-202
,
209
,
212-213
,
222

     in nursing homes,
258-260

     in rehab centers,
140

     visiting,
114

nursing homes,
40-41
,
164-165
,
255
,
257

     adjusting to,
259-261
,
264

     aides in,
163
,
258-259

     care plan meetings at,
157-159

     cleanliness of,
161-162

     costs,
257

     dementia care units in,
162
,
164
,
211
,
256

     placement, evaluation for,
122-124

     redesign of,
244-245

     
see also
Eden Alternative
;
Green House Project

nutrition,
see
diet and food

nutritionists,
106
,
158-159
,
297
,
311

obesity,
see
weight

obsessive-compulsive personality disorder,
51-54
,
268

obstructive sleep apnea (OSA),
298-300

office for the aging,
see
area agencies for aging

Omega 3,
308

Omega 6,
308

ostracism,
103

pain,
115
,
127
,
130
,
142-144
,
158
,
253

Paleo diets,
308-309

paranoia,
19
,
37
,
220

Parkinson’s disease,
40

patient review instrument (PRI),
see
nursing homes, evaluation, placement for

pelvis, fracture,
128-129
,
133
,
146
,
149
,
250

Penny Wise, Pound Foolish: Fairness and Funding at the National Institute on Aging
,
320

pension,
77
,
266

personal care plan,
235

personality changes,
see
behavioral changes

person-directed care,
151-152
,
245
,
247

personhood,
150
,
239-240
,
246-247
,
264
,
276
,
281

pets, as therapy,
107
,
171
,
245
,
265
,
271
,
280

PET scans,
289-290

physical therapy,
114
,
140-142
,
146
,
158
,
249-250
,
258
,
266

pills,
see
medication

plants,
194
,
245
,
247
,
250
,
265

plaques,
276
,
289-291
,
304-309

pneumonia,
19
,
229
,
280

podiatrist,
112
,
175

Power, G. Allen,
264

power of attorney,
see
durable power of attorney

pre-diabetes,
see
insulin resistance

prescriptions,
see
medication

Prevention of Progression to Dementia in the Elderly
,
295

private aides,
see
home care aides

psychiatrists,
52-53
,
57
,
104
,
269
,
275

psychologists, elder care,
40
,
47-48
,
74
,
284

quality of life,
229

Rabins, Peter,
40

Radin, Lisa and Gary,
274

Rankin, Katherine P.,
276

Razadyne,
293

reading,
see
cognitive function
;
language function

recognition of loved ones,
220
,
232
,
263
,
266
,
279

redirection,
136
,
152
,
203

reflexes,
19

rehab,
58
,
133
,
135-136
,
139-146
,
148
,
161
,
164
,
239
,
255
,
258

research, dementia,
2
,
3
,
20
,
108
,
254
,
276
,
289-291
,
293-307
,
312
,
320-325

resident assistants (RAs),
91
,
98
,
100-101
,
111
,
113
,
117-122
,
127-128
,
150
,
166
,
192
,
194
,
196-199
,
203-206
,
208-209
,
214-215
,
217
,
221-223
,
234-235
,
241
,
243
,
253
,
255
,
257
,
263

     in Eden Alternative nursing homes,
245

     in The Green House Project (“Shahbazim”),
247-249

resilience,
273

respite,
see
caregivers, caring for self

restraints,
134

rigidity,
19
,
235-236
,
243
,
266

risk factors,
2-3
,
51
,
295-302
,
311

Robert Wood Johnson Foundation,
248

role reversal,
43
,
55
,
97
,
108
,
128

rosiglitazone,
306

rowboat,
183-185
,
194

Rubinstein, Nataly,
283

Rush University Medical Center,
296

safety: 58,
217
,
323
,
325

     bed rails,
45
,
112
,
115
,
174

     body pillow,
258

     preventing falls,
174
,
258

     rubber mat,
258

     
see also
alarms
;
falls

sandwich generation,
11
,
22
,
96
,
119
,
133
,
202
,
270
,
273

scatolia,
see
feces, smearing of

schizophrenia,
23

seizures,
285

self-expression,
see
cognitive functioning

selfhood,
see
personhood

Senior Cohousing: A Community Approach to Independent Living
,
318-319

sexual behavior,
113
,
213-219

Shahbazim,
see
Resident Assistants, in The Green House Project

shopping,
58
,
76

showering,
57
,
101
,
106
,
121
,
131
,
179
,
181

silver tsunami,
2
,
317

sleep apnea, and dementia,
see
obstructive sleep apnea

sleep disturbances,
2
,
19
,
46-47
,
53
,
100
,
103
,
196-199
,
212
,
220
,
298-301
,
305

     in bipolar II disorder,
269

slowing down,
153
,
164
,
190
,
192
,
273

smell, loss of sense of,
291

smoking,
35
,
38
,
56
,
85
,
106
,
275
,
295
,
311